Californians Sign Up for Online Organ Donor Registry

By M.L. Baker  |  Posted 2005-04-08 Print this article Print

Of the nation's 90,000 people waiting for organ donations, more than a fifth are reportedly in California. When users sign up on the registry, they can enter e-mail addresses of friends and family members.

Californias new online registry for organ donors has already signed up more people than expected. As of Friday morning, more than 17,500 people had registered, easily beating the goal of 15,000 hoped for by the end of the week.
After plans for the registry were stymied by state budget shortfalls, the four federally designated organ- and tissue-procurement nonprofits in the state set up another nonprofit organization, Donate Life California, to operate the registry online.
This registry, built by Inetz Media Group, launched Monday. The California legislature approved plans for a registry in 2001. "Originally, the state was going to research it and come back with how they were going to do it, but the research alone was over a million dollars, so it got bagged," said Brenda Owen, Public Education Coordinator at Golden State Donor Services, one Donate Life Californias founding organizations. Instead, the legislature gave the organ procurement organizations permission to set up a registry themselves, which they did for a cost of about $40,000, said Owen. The savings come largely from the Internet. "The most cost-effective way was an online registry where people would type in their own information rather than having someone else keyboard it," said Owen. Of the nations 90,000 people waiting for organ donations, more than a fifth are in California; about a third of them will die waiting for transplants, according to information provided by Golden State Donor Services. Only about half of families losing a loved one consent to donate his or her organs, said Owen. That rate is expected be much higher if relatives know what the loved one would have wanted. When people sign up on the registry, they can enter e-mail addresses of friends and family members. The site will send messages informing them that a loved one has registered and urging them to register themselves. Click here to read more about how computerized systems can increase the risk of medical errors. Registrants can specify which organs and tissues they are willing to donate in the case of their deaths and whether these can be used for research or sent to another country. Information entered by potential organ donors can only be viewed by transplant coordinators at hospitals, who have read-only access. Regular hospital staff members are not authorized to view the information, said Owen. California is the 37th state to form a donor registry; about two-thirds of existing registries have an online component. Read the full story on CIO Insight: Californians Sign Up for Online Organ Donor Registry Check out eWEEK.coms for the latest news, views and analysis of technologys impact on health care.
Monya Baker is co-editor of's Health Care Center. She has written for publications including the journal Nature Biotechnology, the Acumen Journal of Sciences and the American Medical Writers Association, among others, and has worked as a consultant with biotechnology companies. A former high school science teacher, Baker holds a bachelor's degree in biology from Carleton College and a master's of education from Harvard.

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